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L.I.S.A Inc
 
LISA... is a parent support and lobby group, for parents and families with a family member having an intellectual or multiple disability, and living in a supported accommodation group home in the State of Victoria, Australia.
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HELP US - "EMPOWER & EXPOSE"

"Empower parents/families/friends to better understand and be able to question service provision for their family member with a disability"

"Expose questionable service practices not conducive to the provision of real quality of life care for people with an intellectual or multiple disability"

"Expose and Praise, from the highest hill, Good Services and Practices!"

"What does it mean to be an Australian with a disability? What is life like in the lucky country, in this land of the fair go? One answer we might expect would be, A citizen with the same rights as everyone else!

But if you have a physical, sensory, psychiatric, or intellectual disability, what is life really like? Many Australians would say, It's better, isn't it? The bad old days are gone - Aren't they?

The horror and abuse that went on in institutions, that's all gone now, hasn't it. The poverty, the discrimination, the exclusion, the fear and hatred, that's all ancient history, isn't it?

I would love to be able to say yes, that is all ancient history, but I can't. I'm here to tell you that despite this nation enjoying the longest economic boom in its history, very little has changed for most Australians with a disability", said Dr Rhonda Galbally, at the Canberra Press Club.

Equally, LISA says:
"What is it like for aging parents still providing 24/7 care for their son or daughter at home?" There is little respite, little hope of real retirement and little hope of departing this world in peace their family member will receive good care. Although these parents are the "have not's", many would not have it any other way! Correspondingly:-

"What is it like for caring parents who do have a group home, or similar, for their family member?" It is like a lotto! Services range from 'super' to 'shocking'! They can't rarely be relied upon to provide consistency of care, as even good ones can go down as staff change and management fail to properly manage the service within recognised care policies, standards and values.

So many parents have gone from fighting for years to be a "have got", to then more years of fighting because they find there is little consistent quality of life care for their family member.

We do not believe the general population really understands what life is like for a person with other than regular intellectual capacity/ability.

Before care services can really improve, there needs to be a real understanding and acceptance that those with an intellectual or multiple disability have so little in their lives in comparison with us neuro typicals.

We neuro typicals, the general population, have so much intellectual capacity that we have the time to use but a fraction of this. Whereas, for those with almost any intellectual capacity limitation, the reverse is the case - "Lots of time to do little or nothing without proper quality of life care!"

Everyone caring for a person with an intellectual or multiple disability needs to accept the need to do everything possible to enhance the person's quality of life in every avenue which is meaningful to the person, with a positive focus to multiply the person's ability avenues wherever and as much as possible.

Achievement of real quality of life care results mainly from "Attitude" not "Funding". All carers need to have, or have developed an approach which seeks to enhance the person's quality of life in every possible way - their health, their appearance, their skills, their self esteem, etc, etc.

So, "Why are people reluctant to complain about questionable service provision?" - They fear retribution and intimidation of their vulnerable family member and themselves, and the threat of service withdrawal or reduction. They don't fully understand their rights to service level and quality. They don't want to be seen as a whinger. They don't fully understand the service process. They have concerns about how complaining will affect their relationship with service management and staff. They have insufficient information on how or where to complain. Their previous negative experiences of complaining, put them off. They don't 'know' anything other than the service they're receiving. They feel, complainants can lose more than what they have lost as a result of that which they were complaining about!

Yet, it is a basic human right to complain! People are entitled to have a say, positive or negative, about their support services! It's against the law for people to be treated unfairly as a result of having made a complaint!

We call on everyone to help us say, with a big voice right across Australia":- "Minder Care is Not Good Enough!"

Those of us challenging that and those contributing to the situation Dr Rhonda Galbally dramatically described to the Canberra Press Club, that described in "Shut Out", and that hoping to be corrected by the NDIS principle, need to consider the following quotations:-

"Cautious, careful people, always casting about to preserve their reputations... can never effect reform". Susan B, Anthony, Women's rights leader (1820 - 1906).

"When people not used to speaking out are heard by people not used to listening, then real change can be made" - John O'Brien.

"Most of the things worth doing in the world had been declared impossible before they were done" - Louis D. Brandeis

"You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do" - Eleanor Roosevelt

"Change will not come if we wait for some other person or some other time. We are the ones we've been waiting for. We are the change that we seek." Barack Obama

The LISA Quest: To dream the impossible dream; To fight the unbeatable foe; To bear with unbearable sorrow; To run where the brave dare not go; To fight for the right; Without question or pause; To be willing to march into Hell; For the benevolent cause; This is our quest, To follow that star; No matter how hopeless; No matter how far.


We call on everyone to help us say, with a big voice right across Australia":- "Minder Care is Not Good Enough!"

Use
our blog to tell us your thoughts, you can do so anonymously. Or, send us a letter or email us.

LISA Inc   ~   Phone: 03 9434 3810   ~   Email: vk3qq@optusnet.com.au   ~   Address: 73 Nepean Street Watsonia VIC 3087

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