Wednesday, June 15 2011
Herald Sun Newspaper, Australia
Monday, June 12, 2011
I have an adult child who is severely disabled and who lives at home with me.
All his life, and it feels like all of mine, we have struggled to get him the right equipment, the right therapy, into the right schools and day services while still trying to live a reasonable, fulfilling life.
Even with the best disability workers in the world, realistically I believe only a family member can "go the distance" and achieve the best outcomes possible for these, our disabled children.
Australia desperately needs a National Disability Insurance Scheme, as recommended by the Productivity Commission, to help millions of families like ours.
I have no more superannuation left after buying a purpose-built van, together with a ramp for the wheelchair, and the wheelchair itself now needs replacing.
What will happen to my son when I am no longer here to speak for him?
He will become just another name on the list of Australia's most vulnerable and disadvantaged people who wait in vain to be considered important enough to also be allowed to have "quality of life".