The show will be repeated on Wednesday 5 September at 1pm on SBS One and 7.30pm on SBS Two. You can watch it on Wednesday on the Insight website: sbs.com.au/insight. Insight will also be hosting a virtual forum on its Facebook page on Thursday 6 September at 1pm. Acting Commissioner Karen Toohey will be online to talk about the issues raised on the show, and the bigger picture problems and potential solutions.
Families of children with profound disability are reaching breaking point.
It’s one of the toughest decisions a parent could face: whether to hand over a child with a disability to the care of the state.
A report by the Victorian Equal Opportunity and Human Rights Commission found that in Victoria alone, an average of 50 children are relinquished every year. With inadequate respite, many families of children with disabilities are struggling to cope.
Will a new national disability insurance scheme make a difference?
In an emotional and honest discussion, we hear from people with a disability, their families and the government about the extraordinary challenges they face.
Producer: Meggie Palmer
Associate Producer: Hannah Meagher
Meet the Guests
Rogers Family – Pam, Geoff, Mason and Emma
The Rogers family experienced both relief and grief when they handed over care of eight year old Boyde to the state. Boyde has an intellectual disability and challenging behaviours including ‘pica’, which means he tries to eat non-food items like stones, grass and faeces. He requires 24/7 care. Boyde’s parents Pam and Geoff say they decided to relinquish care because the lack of government support to look after Boyde was putting a strain on their marriage and on Boyde’s siblings.
Graham Family – Coralie, Susan and Kris Shepherd
Coralie says handing over care of her son to the state was the hardest decision she’s ever had to make. Joel has needed constant care ever since a medical procedure went wrong and he sustained a brain injury as a toddler. Since relinquishing Joel when he was 18 years old, Coralie has remained an active part of his life.
Sandra and Ely Pleitez
Ely and her mum Sandra are together all day, every day. Twenty-two year old Ely has a rare degenerative disease, Ataxia-telangiectasia, which affects her nervous system and muscle control, making it hard for her to speak and write. Her mother receives no regular respite. Sandra says she when she applied for respite she was told that there were other needy people in line ahead of her. Ely worries about who will provide her full time care into the future.
Sarah Carter Murray
Sarah is on the brink of giving up care of her son Christian. Six year old son Christian was born with a rare genetic syndrome. He is extremely hyperactive and requires 24 hour, one on one care. As a full time carer, Sarah struggles to juggle Christian’s high care needs with those of her three other children.
Meggie Palmer, Insight Producer SBS Television, 14 Herbert Street, Artarmon, NSW, 2064 p: 02 9430 3689 l m: +61 400 060 104
Email: Meggie.Palmer@sbs.com.au - www.sbs.com.au/insight